Usa news

Hospital billing was supposed to be made simpler, but federal law has failed, Sun-Times investigation finds

Five patients are at Advocate Lutheran General Hospital in Park Ridge for a diagnostic echocardiogram.

For the same noninvasive test of the heart, the five patients could each get different prices — as little as $973 or as much as $1,721, depending on their insurance provider and plan.

If a patient is uninsured, they’d get a “discounted cash price” of $1,155 — hundreds of dollars less than those with certain insurance plans, according to the hospital’s publicly posted data.

The wildly varying prices for the same procedure are emblematic of a medical pricing system that some say is far too complicated and the result of secret negotiations between hospitals and insurance companies that occur before patients even walk in the door.

To try to shed light on this system, the Chicago Sun-Times and the University of Chicago’s Mansueto Institute for Urban Innovation gathered 2025 pricing data on thousands of medical procedures, which hospitals publish to comply with a federal transparency law.

Their analysis found large differences in prices for procedures throughout the Chicago area, whether comparing across hospitals or between different insurance plans at one hospital.

The price differences were repeated again and again in the data — from colonoscopies and hemodialysis to x-rays and ultrasounds — revealing a billing system that is opaque, inconsistent and difficult for most consumers to understand.

“You have a bunch of insurers; you have a bunch of hospitals. They don’t all reach the same pricing deal,” economist and University of Chicago professor Joshua Gottlieb says. Gottlieb is also co-director of UChicago’s Becker-Friedman Institute’s Health Economics Initiative and consulted with the Mansueto data team.

“Although the hospitals and the insurers have negotiated this, now it’s the consumer who sees that price and says, ‘Where did this come from?’” he says.

The differences can be stress-inducing for consumers who encounter a higher-than-expected price.

Emily Kostecka, 29, has had several MRIs over the years, related to her epilepsy diagnosis, and says her portion of the bill is usually a few hundred dollars.

So the Logan Square resident was floored last year when Northwestern Memorial Hospital’s billing department called to alert her that an upcoming outpatient MRI appointment would cost about $6,000 after her insurance handled the claim.

“I was kind of freaking out,” says Kostecka, who has a high-deductible insurance plan with Blue Cross Blue Shield.

She briefly considered taking out a loan to pay for the test but decided to shop around. She chose Humboldt Park Health, a small safety-net hospital that charged her far less. Her portion of the bill was $115.

While it was a bit of a hassle to pick up the disc with her results in Humboldt Park and find the right place at Northwestern’s Streeterville campus to drop it off for her doctor, she says it was worth it.

Still, she says the experience was eye-opening: “Why is this on me to look for a better price for this thing that I need?”

Patients without control

America’s byzantine system of healthcare pricing is a mystery to most consumers.

While polls show most people are concerned about their ability to afford healthcare, many know little about the mechanics behind the bills they receive.

Those who pay high premiums for gold-plated insurance plans might not even notice the prices billed for their care because the insurer picks up most of the billed cost. Same for patients who’ve already met their annual deductible.

“For people well-covered, the price — high or low — will not affect whether they go to the hospital or not,” says Ge Bai, a Johns Hopkins University professor who researches healthcare costs. “They don’t have skin in the game.”

But for consumers with high-deductible insurance plans — including nearly half of privately insured Americans under age 65, who choose these plans for more affordable premiums — the high prices for hospital procedures can make a huge dent in their budgets.

Until they meet their high deductible, these patients shoulder much of the cost of any procedure.

Healthcare can include some of the biggest purchases consumers make, on par with a car, rent or mortgage payments. But unlike those transactions, in which the consumer could negotiate the price they’re willing to pay, healthcare prices are largely beyond consumers’ control.

That’s because the prices of procedures are negotiated between the hospital and insurer.

Hospitals determine what’s essentially their sticker price for each of the thousands of procedures and tests they offer. The prices are just a starting point for negotiations with insurers. Hospitals also set discounted cash prices, which are the amounts they’re willing to accept from people with no health insurance.

Each procedure is classified with a Current Procedural Terminology, or CPT, code. The codes are used by private insurance companies, as well as Medicare and Medicaid.

Insurance companies negotiate with hospitals on the prices they’re willing to pay for procedures under their various plans, such as HMOs or PPOs, that are offered to consumers.

Large insurers can leverage patient volumes to get a better price. And hospitals with highly specialized care can command top prices.

“Healthcare is certainly not a normal marketplace,” Christopher Whaley, associate professor at Brown University’s School of Public Health, says. “Where there’s a mystery, there’s a margin.”

With fully-insured private commercial plans, insurers are allowed to keep 20% of the premiums they collect to spend on administrative, overhead and marketing costs. Critics claim this provides a disincentive for insurers to drive a hard bargain for patients because if healthcare costs more, premiums will go up and the value of insurers’ 20% slice also rises.

“The insurance companies often benefit from the high price,” Bai says.

The prices of procedures are influenced by the patient population of each hospital, which typically includes a mix of people with private insurance, those on Medicare or Medicaid and uninsured patients.

Findings in the data

The Sun-Times and the Mansueto Institute found it’s common for negotiations to result in varying prices. But the data is presented in a way that makes it difficult to do apples-to-apples price comparisons between hospitals, as there can be hundreds of different plans under a single insurer and hospitals use different names to identify these plans in their data. As a result, the researchers typically used median prices.

Here are some of the findings found in the data:

The price differences are felt most keenly by consumers with high-deductible plans, who made up about 42% of the private insurance market in 2023, according to a survey by the CDC’s National Center for Health Statistics.

Gottlieb says if more people had high-deductible plans, you might see greater pressure from patients and eventually less overall healthcare spending. But the marketplace is a hodgepodge of payers who don’t share the same focus.

“You’ve got some people who are really insensitive to price because they don’t have a high-deductible plan, and they’re in the same market as those who have a high-deductible plan,” Gottlieb says.

“The hope with high-deductible plans was that it would push the market to account for patients’ price sensitivity, but I think not enough people have these plans. And even if you have one, some people meet that deductible by the end of the year, and so then they don’t care about price. So there’s just not much pressure on hospitals to make the pricing transparent or attractive.”

Even industry leaders admit there’s frustration.

“Pricing in healthcare certainly is complicated. From a hospital’s perspective, we really understand patients’ desire to have clarity about what their potential costs are going to be,” Molly Smith, group vice president for policy at the American Hospital Association, says.

Smith says in negotiations, hospitals are trying to reach contracts with insurance companies that will reimburse them fairly overall.

“Hospitals, unlike really any other provider in the healthcare system, have a lot more overhead that has to get shared across services. They have to figure out how to finance their emergency departments. There are a lot of services where hospitals lose money. Any maternity care, behavioral health, pediatrics, infectious disease — these are all services where you get underpaid substantially. And so you have to then build in the overhead costs to maintain those services,” she says.

Smith says most consumers never pay the price listed in the data.

About 92% of Americans have some form of health insurance, whether private or government-run. For those with private insurance, the amount they owe is affected by their coverage, what’s left on their deductible and proprietary discounts that insurers may make based on bundles of services involved in a procedure.

“What a patient ultimately ends up getting billed is not going to be what you see in the [pricing] files,” she says.

A Northwestern Medicine spokesman declined to comment, but provided the hospital’s online price estimator.

Advocate Health didn’t respond to requests for comment.

Endeavor Health declined an interview request, but a spokesman said in a statement: “We recognize that healthcare affordability is a significant concern for many in our community and navigating billing for services can be challenging. Endeavor Health is focused on providing high-quality care while ensuring patients are aware of the resources available to them, including financial assistance programs and various payment options. We encourage patients with questions about their bills to contact our billing department for assistance.”

‘Can’t make heads or tails’

Hospitals are required to publicly post their prices for the procedures and tests they offer, using CPT codes, under the landmark Hospital Price Transparency Rule that took effect in 2021.

The idea was that pricing transparency would empower consumers and drive competition.

But compliance has been spotty and much of the data isn’t consumer friendly.

Since June 2022, the federal Centers for Medicare & Medicaid Services has notified 28 hospitals that they’re out of compliance, taking steps including issuing a 2023 civil penalty of $847,740 against Community First Medical Center in Portage Park and a $51,615 fine against Pinnacle Hospital of Crown Point, Indiana, in February.

Community First Medical Center at 5645 W. Addison St. in Portage Park

Pat Nabong/Sun-Times file

Even when prices have been posted, complicated and unwieldy datasets make it unhelpful for the average consumer trying to comparison shop for, say, the best price for an MRI. And insurers’ bundling and discounting can change the final price.

The federal government is working on reforms to streamline how data is presented in hopes of making it more useful. But research shows consumers don’t typically comparison shop for healthcare, usually opting for whatever their doctor recommends.

“The average consumer can’t access the data, can’t make heads or tails of it. You have to be able to compare one hospital to another. Without comparisons, you don’t have anything actionable,” Jeanne Pinder, founder and CEO of ClearHealthCosts.com, says.

The biggest beneficiaries of the 2021 federal transparency rule seem to be insurers and hospitals, who use it to see what their competitors are doing, Pinder says.

Smith, of the American Hospital Association, says her group is looking ahead to the coming Advanced Explanation of Benefits provision mandated by the No Surprises Act, a federal law enacted in 2020 to help prevent consumers from receiving unexpected medical bills.

Under the provision, patients will receive a good faith estimate of what they’ll owe ahead of any scheduled medical service.

The reform was supposed to take effect in January 2022 but has been delayed while industry stakeholders wrangle over the best way to execute it.

“We think this is going to be kind of the gold standard for scheduled services. It’s just been complicated to figure out how exactly to make this happen,” Smith says.

Laura Minzer, president of the Illinois Life & Health Insurance Council, admits the system is “very flawed. It is complex and difficult for consumers, as much as [for] insurers and other parties within the healthcare system.”

Adding to an already complicated system are requirements that insurance companies provide network adequacy, or reasonable access to hospitals, doctors and specialists for everyone under the insurer’s plans, Minzer says.

In less-served areas of Illinois, these requirements can give hospitals an upper hand in price negotiations, she says.

Minzer says insurers worry that expected federal cuts to reduce Medicaid spending by $911 billion over 10 years will push hospitals to jack up prices across the board for private insurance plans.

“The costs have to be recouped somewhere,” she says.

Some websites are trying to shed light on price differences, including PatientRightsAdvocate.org, which has an online price comparison tool, and ClearHealthCosts.com, which has undertaken its own deep dives into healthcare pricing in a handful of metro areas.

Consumer advocates suggest that for planned diagnostic tests, patients shop around using area hospitals’ online price tools — with the understanding that the tools are only estimates.

To make sure a lower price is worth it, patients can research hospitals’ quality metrics at hospitalsafetygrade.org.

The UChicago researchers found numerous instances of discounted cash prices that were lower than prices under private insurance plans.

The cash price for a minimally invasive balloon angioplasty at Endeavor Health’s Northwest Community Hospital was $7,962.

But the median prices under insurance plans were $18,423 for Blue Cross Blue Shield, $21,155 for Humana, $22,014 with Cigna, $25,917 with United Healthcare and $29,742 with Aetna.

Some consumer groups, like Patients Rights Advocate, advise getting the CPT codes before planned procedures or tests and asking hospitals for their discounted cash price to compare against your insurance plan’s price.

People with high deductible plans who find the cash price to be lower could ask the hospital to not run the transaction through their insurance, the group says.

But consumers should be aware that if they pay cash, it won’t apply to their annual insurance deductible — which could make any cost savings less attractive in the long run.

Kostecka, the Logan Square woman who saved thousands on her MRI, says she’s glad she shopped around.

In a perfect world, healthcare pricing would be a lot more uniform, she says.

“Just having it be more transparent, easier to find out the difference — that would be helpful, too.”

Tell us what you see

  • Have you received a confusing hospital bill? Or seen a sharp price increase for a procedure or test you’ve had in the past?
  • Have you ever tried to bargain down a hospital bill? What happened?
  • What aspect of the system would you like to see investigated?

Sun-Times consumer investigations reporter Stephanie Zimmermann would like to hear from you. Click here to share your story, or email szimmermann@suntimes.com.

How we analyzed prices at Chicago-area hospitals

This project was done through a program at the Mansueto Institute for Urban Innovation at the University of Chicago that pairs data scientists with journalists to examine issues of local importance.

Led by University of Chicago professors Christopher Berry and Joshua Gottlieb, graduate students Divij Sinha, Sarah Hussain, Anoushka Gehani and Kalysa Blunt spent most of summer 2025 extracting and standardizing pricing data from hospitals throughout the Chicago metro area.

They created a large dataset that included more than 208 million rows with billions of cells listing prices. The team ran queries on prices for various surgical procedures and diagnostic tests using Current Procedural Terminology, or CPT, codes used in medical billing.

The researchers analyzed the prices from several angles, including across hospitals by calculating the median prices under major insurers’ plans and by delving into individual hospitals using various insurance plans.

A sample of the work can be found at healthcare.miurban-dashboards.org. The full dataset is available upon request by contacting the Mansueto Institute at miurban@uchicago.edu.

Exit mobile version