A TIKTOKER has revealed that her 10-month-old daughter has died after suffering from a rare skin disease.
In a heartbreaking social media clip, Hannah Campbell said her daughter Elliana died peacefully on Monday night.
Elliana, who was born in May 2024, suffered from Junctional epidermolysis bullosa – a genetic condition that causes the skin to blister.
“She passed peacefully, wrapped in love,” Hannah told her fans in the clip.
“I don’t know what to do with myself today.
“I’m heartbroken and I’m angry.”
She claimed the disease had “stolen” her child from her.
Hannah, who lives in Brewer, Maine, documented her daughter’s battle with the disease on social media.
Just days before Elliana’s death, Hannah revealed how her daughter’s body was shutting down.
The parent said her daughter’s body was “tired” and “fading.”
“She hasn’t opened her eyes, eaten, and can hardly cry,” she added.
“We don’t know how much time we have left.
“But, we’re soaking up every second with her.”
Elliana was diagnosed with the rare skin disease at just two weeks old.
In a Facebook post, Hannah admitted that she felt helpless when it came to her daughter’s disease.
In August, the mom opened up about the moment she was told about the diagnosis.
“It was heartbreaking,” she told the Fox affiliate WFVX-TV in August last year.
“It was really sad to hear that she probably won’t live past the first year of life.”
Her dad, Jacob, said the family was just “holding onto hope” after being told about her condition.
Hannah used TikTok to raise awareness about the rare condition.
In one clip, she showed viewers how she bandaged her daughter’s ears and treated the blisters.
And, in another, she documented the care that went into her daughter.
What is junctional epidermolysis bullosa?
JUNCTIONAL epidermolysis bullosa is a rare skin condition that causes the skin to blister.
- There is no cure, but less severe cases can be treated.
- It’s a genetic condition that tends to impact young children.
Symptoms
- Fragile skin that blisters easily
- Itchy skin
- Difficulty swallowing
- Scalp blistering
- Thick or unformed nails
- Mouth and throat blisters
Source: The Mayo Clinic
There is an incredibly severe form of junctional epidermolysis bullosa and one that can be managed with medication.
Those who suffer from the most severe form have blisters across their body, per Medline Plus.
Blisters can appear around the mouth which makes it difficult to eat food.
And, faces can be covered in scars.
The blistering can cause red patches to appear, known as granulation tissue.
But, granulation tissue is at risk of infection.
Around three million people in the US are diagnosed with junctional epidermolysis bullosa each year.
There is no cure, but milder forms can be treated.
Elliana suffered from a rare skin disease that caused blisters[/caption]